Patient Resources
Patient Resources
During the past 25 years, UMDF has built a network of top clinicians, hospitals and researchers dedicated to fighting mitochondrial disease.
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The MCN represents a group of physicians at medical centers across the country that have expertise and experience in providing coordinated, multidisciplinary care for patients with genetic mitochondrial disease.
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People Against Leigh Syndrome, (PALS), was formed in 2013 and has built awareness of Leigh Syndrome and raised funds to support the medical community in their quest to develop viable treatments and ultimately a cure.
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FARA’s Mission is to marshal and focus the resources and relationships needed to cure FA by raising funds for research, promoting public awareness, and aligning scientists, patients, clinicians, government agencies, pharmaceutical companies and other organizations dedicated to curing FA and related diseases.
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